Sunday, March 17, 2013


I'm cancelling all the events in my calendar. I'll be rebuilding my calendar in the coming days. 

I will refocus my efforts to schedule events that are best for me and my health. 

With the time I have left, I will spend every holiday in my home with my girls.

Tuesday, March 12, 2013


Daddy, you're getting slow. I want you to be fast like me.
-Cora Conway, 5.
Amazing what kids pick up on.

Tuesday, March 5, 2013


I was napping when Amanda and Louise got home (Cora was at gymnastics).

Louise noticed me attempting to get upright. She walked over and grabbed my hand, grimaced, grunted, and tried to pull me up.

At the time, Amanda and I exchanged heartwarming glances.

Now, I feel quite bitter that ALS has turned my 1 year-old into another one of my caregivers.

Tuesday Toe-Tapper

Monday, March 4, 2013

A comment a con-man tried to post...

He's back!

I wrote this last year

Marty tried posting this goading reply...just so you all know what type of person is out there

Wow. That comment is so poetic and sounds as if it has at least a little truth to it.

On another topic, too bad that loved one didn't heal.

Solving so called als is often not even that difficult. Won't happen by fooling yourself into bashing me though.

Sunday, March 3, 2013


I've been busy working on a video to say thank you to the participants of the Conway Cup. By "busy," I mean I have to rely on Amanda to help me get my laptop and camera situated. After all, it's hard to be taken seriously if it looks like you have a shelf -- or something similar -- sticking out of your ear!

All of the clips have been filmed, all I have to do is stitch them together...

ALS & MND News

2 new genes linked to amyotrophic lateral sclerosis and related disorders
EurekAlert (press release)
A study led by St. Jude Children's Research Hospital has discovered mutations in two genes that lead to the death of nerve cells in amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, and related degenerative diseases. The same ...
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