Friday, February 15, 2013

What a Label

Long before my diagnosis, I created an email account for Cora. The simple reason for doing so was to give me a place where I could leave notes for her.

It took me a while after my diagnosis to make an account for Louise.

My goal is to write a short message for them both, whenever something worthy should enter my mind.

They will also appear on here under the label "TMDG"

Labels appear as links at the bottom of a post. Clicking on a label displays all the posts tagged with that label.

TMDG - To My Darling Girls

Never Forget

I love you

Thursday, February 14, 2013

Please Help

From the folks at the MDA:

You can make a profound impact by sending an email urging your elected officials to support The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD CARE) Amendments Act of 2013 (H.R. 594/S. 315). 

It takes less than five minutes, and we have posted a template on our website to help you get started. Please open the advocacy tool, click on the name of the bill, and enter your ZIP code to take action now.

Tuesday, February 12, 2013

ALS & MND News

Stem Cell Discovery Gives Insight Into Motor Neuron Disease
Science Daily (press release)
Although TDP-43 mutations are a rare cause of motor neuron disease (MND), scientists are especially interested in the gene because in the vast majority of MND patients, TDP-43 protein (made by the TDP-43 gene) forms pathological clumps inside motor ...
See all stories on this topic »

Friday, February 8, 2013

Busy Bee

...working on planning for the Conway Cup

...Cora's birthday FDA hearing to prep for

forgive the sparse number of posts

Here's a foot-tapper to keep you happy