Saturday, January 11, 2014


We had some interesting visitors to the house this week.

I pulled my back two weeks ago. The trip to the doctor resulted in a prescription to help my back, and a prescription for a home health aid.

We had a physical therapist visit. A visit from a the aid coordinator. And a visit from a guy that seemed to be coordinating with available social programs.

Don't get me wrong, all of the visitors were very warm and friendly. But I feel like a fresh wave of reality rolled ashore.

There isn't really time to brace for the change in life, or even the idea of someone coming in to your home to help care for you.  Still, I am thrilled at the idea of Amanda getting some time for herself.

ALS has quietly changed the roles Amanda has to play in my life. Needless to say, the vast majority of the changes haven't been helpful for our relationship. The changes hide in plain sight.

We have more visitors coming in what looks set to be an interesting week ahead.

1 comment:

  1. love you Tony and very proud of you mum xx