Tuesday, February 4, 2014


Amanda and I returned home from Baltimore today. I had an appointment at the ALS Clinic at Johns Hopkins yesterday afternoon.

If you visit this blog frequently, you may recall that clinic appointments follow a certain schedule; see the occupational therapist, see the physical therapist, see the MDA representative, and then see the doctors and nurses that are the backbone of the clinic.

My breathing test was conducted during the final section. My breathing capacity is 48% of what it should be for an average man my age.

That value means I'm now due to get a feeding tube inserted in the next 8 weeks.

It also means that my prognosis is, conservatively, making it another 12-18 months.


  1. Just because we don't say a lot doesn't mean we aren't listening mate.So keep posting as long as you like.