Tuesday, April 15, 2014

Prognosis and Care

I recently spoke to some folks that I know read my blog. When I mentioned my prognosis from my clinic visit in February there were quite a few people that hadn't heard the news. It was buried as the last sentence in a blog post, so I suppose I shouldn't be surprised it was missed.

In February, I was told I have 12-18 months to live.

More recently, I have been taken under the wing of our local hospice. The decision to seek hospice care came about as my Doctor-ordered home care reached the limit of what my health insurance would allow. I feel fortunate, since we have a well-developed local hospice that receives a lot of support from the local community.

It has been a smooth transition, and the standard of care I've received has been fantastic.


  1. You are such an amazing man! You and your family have touched so many people throughout this sickening journey!

  2. Yeah, I definitely do remember reading the prognosis/time-line info before. But it's still a startling thing to comprehend, huh? I like to think of time being relative, though. so eighteen months, geologically speaking, is the blink of an eye, but in dog years it is, like, ten years or something, right? We'll go with the dog years on this one! And I know you're making every day count, which most of us pretending- to- be- immortal-folks forget to do. Through your difficult journey, you and Amanda are teaching so many of us such important lessons. So thanks for all that. As for Hospice, yeah those people are fabulous! I am glad you are getting help from them...they have done so much good for my family and countless others and we are indeed so lucky to have that organization in our community. Big Love to you and yours from me!

  3. You sir are an inspiration,
    Any words I say are given in ignorance of your condition,but I will now look into it a bit.Stay strong and get yer Da running around after you :))).
    Hail Hail & Y.N.W.A.

  4. Your old da has directed a few of us from the CQN site onto here to comment.

    I am privileged that he gave me the opportunity to offer words of encouragement to you as you face a situation that we'd all prefer you did not have to face. I am glad you have a good hospice as I have found that hospice workers are the salt of the earth and will deal with each and every emotion you range through with sympathy and understanding.

    I hope you have many laughs along the way and that they are not of the forced bravery kind. I have bookmarked this page and hope to return with a few more comments so keep up those entries on the blog and make us all respond to what you have to say.

    All the best to you and your family. Will speak again soon.